Comments on: What Susan Boyle Taught The World http://www.amcdocumentary.org/2009/04/what-susan-boyle-taught-the-world.html Living with AMC Sat, 04 Sep 2010 23:58:05 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Nancy Marshall http://www.amcdocumentary.org/2009/04/what-susan-boyle-taught-the-world.html/comment-page-1#comment-3820 Nancy Marshall Wed, 26 May 2010 05:03:30 +0000 http://maggie.graphicallydesigningblogs.com/2009/04/what-susan-boyle-taught-the-world/#comment-3820 What a powerful entry. My baby daughter Lucy was diagnosed with AMC affecting all her lower extremity joints. What a role reversal for me. As an internal medicine doc, I'm usually the one giving such news. I remember the Ortho doc saying something about "a silver lining" as he explained she would be completely independent due to her functional upper limbs. Somehow I didn't think Lucy or I were lucky. Now that three weeks have passed, I am just starting to grasp some of what you mentioned. I am still wracked with guilt. I gave up certain cheeses, all caffiene, processed anything during pregnancy, but somehow, I couldn't protect my child from this fate. I know this is teaching me so much about myself and how I view or used to view people like my daughter. I feel so much love when I look at my little girl, and so much fear about her life, her future. I appreciate the wealth of experience your post entails. I hope someday I can look back and reassure someone like me who doesn't know what to expect. Thank you, Nancy What a powerful entry. My baby daughter Lucy was diagnosed with AMC affecting all her lower extremity joints. What a role reversal for me. As an internal medicine doc, I’m usually the one giving such news. I remember the Ortho doc saying something about “a silver lining” as he explained she would be completely independent due to her functional upper limbs. Somehow I didn’t think Lucy or I were lucky.

Now that three weeks have passed, I am just starting to grasp some of what you mentioned. I am still wracked with guilt. I gave up certain cheeses, all caffiene, processed anything during pregnancy, but somehow, I couldn’t protect my child from this fate.

I know this is teaching me so much about myself and how I view or used to view people like my daughter. I feel so much love when I look at my little girl, and so much fear about her life, her future.

I appreciate the wealth of experience your post entails. I hope someday I can look back and reassure someone like me who doesn’t know what to expect.

Thank you,
Nancy

]]> By: Michele S. http://www.amcdocumentary.org/2009/04/what-susan-boyle-taught-the-world.html/comment-page-1#comment-25 Michele S. Thu, 23 Apr 2009 11:20:00 +0000 http://maggie.graphicallydesigningblogs.com/2009/04/what-susan-boyle-taught-the-world/#comment-25 Beautiful. Beautiful.

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