Comments on: Conquering Your Fears As A Parent http://www.amcdocumentary.org/2009/05/conquering-your-fears-as-a-parent.html Living with AMC Sat, 04 Sep 2010 23:58:05 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: kaitlyn g. http://www.amcdocumentary.org/2009/05/conquering-your-fears-as-a-parent.html/comment-page-1#comment-5486 kaitlyn g. Thu, 19 Aug 2010 02:24:36 +0000 http://maggie.graphicallydesigningblogs.com/2009/05/conquering-your-fears-as-a-parent/#comment-5486 I have a 20 month old who has arthogryposis - love to read these posts, it's so nice to see other moms are out there who understand. I have a 20 month old who has arthogryposis – love to read these posts, it’s so nice to see other moms are out there who understand.

]]> By: Audrianna McManus http://www.amcdocumentary.org/2009/05/conquering-your-fears-as-a-parent.html/comment-page-1#comment-3524 Audrianna McManus Fri, 14 May 2010 18:58:16 +0000 http://maggie.graphicallydesigningblogs.com/2009/05/conquering-your-fears-as-a-parent/#comment-3524 i love everything you have said. I am 20 yrs old with an almost 5 month old with this the genetics doctor called it Amyoplasia Congenita Disruptive Sequence. While we were pregnant we knew she was gonna have clubbed feet and hand malformations and she also had gastroschisis, They did a c-section because she was breech and i wasnt aware of anything because of the meds i woke up about and hr and a half after my baby had been born and i couldnt see her right away because of everything they had to do for her with her gastroschisis, which for anyone who doesn't know what that is its where her intestines were on the outside of tummy, so everything had to stay sterile around her for a while and when i finally got to see her for the first time her arms were straight by her side her right leg stuck straight up in the air and her lther leg was bent and tucked up and she wasnt moving and i had a lot of morphine in me i looked at her and i cryed and wondered what had happend to her. My fiance was watching the c-section the whole time and he said when they pulled her out he thought the doctors had done something to her because this was so unexpected. We have been through so much now with her. I cant even imagine life without her now. No matter what way she is she is so perfect to us and her problems have helped us be better people and grow stronger together! And like i tell everyone god made like this for a reason! i love everything you have said. I am 20 yrs old with an almost 5 month old with this the genetics doctor called it Amyoplasia Congenita Disruptive Sequence. While we were pregnant we knew she was gonna have clubbed feet and hand malformations and she also had gastroschisis, They did a c-section because she was breech and i wasnt aware of anything because of the meds i woke up about and hr and a half after my baby had been born and i couldnt see her right away because of everything they had to do for her with her gastroschisis, which for anyone who doesn’t know what that is its where her intestines were on the outside of tummy, so everything had to stay sterile around her for a while and when i finally got to see her for the first time her arms were straight by her side her right leg stuck straight up in the air and her lther leg was bent and tucked up and she wasnt moving and i had a lot of morphine in me i looked at her and i cryed and wondered what had happend to her. My fiance was watching the c-section the whole time and he said when they pulled her out he thought the doctors had done something to her because this was so unexpected.

We have been through so much now with her. I cant even imagine life without her now. No matter what way she is she is so perfect to us and her problems have helped us be better people and grow stronger together! And like i tell everyone god made like this for a reason!

]]> By: Martha Hernandez http://www.amcdocumentary.org/2009/05/conquering-your-fears-as-a-parent.html/comment-page-1#comment-2914 Martha Hernandez Tue, 27 Apr 2010 06:29:38 +0000 http://maggie.graphicallydesigningblogs.com/2009/05/conquering-your-fears-as-a-parent/#comment-2914 That's so beautiful. I have an amazing 18 years old daughter with AMC, her name is Lupita. Every word you say in this article, seems to come directly from my heart. We overcame so much together all these years, but the happier moments are so much more than the sad ones; now a new stage approaches, and my fears come back again. This is the moment when I think, I wish I could do something for her to not suffer or go through the next struggles as a young lady; I wish it was me who will face everything else, and I feel a deep pain in my heart, like if my heart was crying. Then, I lay my fears on my Heavenly Father; He takes everything away once again. I love my daughter so much; she is so special and beautiful, and that's true what you say, they have strong light that you are drawn to. She is a special gift from God; she is an example of happiness, light and strength. I sent you a hug and all my support; I don't know about your kid with AMC yet, since it's the first time I go through the website, but just reading this article made me feel so related with you. My best wishes for you and your family, and for every family with the gift of AMC. "Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." (Matthew 11:28-30) That’s so beautiful. I have an amazing 18 years old daughter with AMC, her name is Lupita. Every word you say in this article, seems to come directly from my heart. We overcame so much together all these years, but the happier moments are so much more than the sad ones; now a new stage approaches, and my fears come back again. This is the moment when I think, I wish I could do something for her to not suffer or go through the next struggles as a young lady; I wish it was me who will face everything else, and I feel a deep pain in my heart, like if my heart was crying. Then, I lay my fears on my Heavenly Father; He takes everything away once again.
I love my daughter so much; she is so special and beautiful, and that’s true what you say, they have strong light that you are drawn to. She is a special gift from God; she is an example of happiness, light and strength.
I sent you a hug and all my support; I don’t know about your kid with AMC yet, since it’s the first time I go through the website, but just reading this article made me feel so related with you.
My best wishes for you and your family, and for every family with the gift of AMC.
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” (Matthew 11:28-30)

]]>