Comments on: Wisdom Comes with Opportunity, not Adversity

By: amcdocumentary

amcdocumentary — Wed, 12 Oct 2011 13:35:32 +0000

Thanks for sharing your story. I agree what often seems like a challenge turns out to be a blessing. Have you visited our support group at http://www.amcsupport.org? If you have any questions regarding splinting or therapy to help your son, there are plenty of resources and other families you can meet.

By: brenda

brenda — Sat, 08 Oct 2011 01:22:26 +0000

Hello, I am a first time mom, got pregnant at 16 and had a son a month after my 17th birthday. I had a wonderful pregnancy but unfortunately my son was born with amc. I really didn’t understand what that ment or if his wrists were ever going to get better. I had post partum depression for a long time. I couldn’t look at my son without bursting into tears. I asked myself day and night what I did wrong and why him, he never hurt any body, never asked for it and yet his life was destined to be different. My son is healthy and looks like everyother child except for his wrists, they are contracted and makes him hold his hands differently. I have changed my mind set from feeling depressed to feeling thankful. Thankful that I got a chance to meet this wonderful smart little baby that has made my life so much better

By: Hailey

Hailey — Wed, 22 Dec 2010 23:47:40 +0000

I love your quote “I know that for every ignorant comment someone will make, 10 other people will stop to tell me how beautiful my child is and how lucky I am. ” So true!!!

By: amcdocumentary

amcdocumentary — Mon, 09 Aug 2010 03:12:12 +0000

Nana,
Good to hear from you. I completely agree with you, our kiddos are precious children. And I believe that many find the well of strength within themselves they never knew existed. I know I did and having Owen completely changed my life for the better.
Thanks for commenting.
Peg

By: Nana connal

Nana connal — Mon, 02 Aug 2010 01:06:09 +0000

hey from Nana at long last I have internet! Some times we winge at the life we have, then an event changes us as people some for the good and some for the worst. Some can’t cope, others find a well of strength in within themselves that they never realized was there.
A disabled child is a shock to the family and will test the strength, love and loyality of any relationship or marriage. More strength to all you, only those who have these precious children know how much effort you put in. Cheers and Rainbows Nana Connal

By: Coraley Craig

Coraley Craig — Tue, 18 May 2010 12:28:45 +0000

Firstly Kerryanne I am sorry for your loss. I am a parent of a beautiful nearly 2 yr old daughter with -Minnicore/Multicore Myopathy and AMC, I too was told that my daughter wouldnt survive birth, she nearly didnt and has nearly died and stopped breathing so many times I have lost count. Karlia has had many lung collapses and chest infections. Yes I have self-doubts, questions fears and yes I am scared as what is to come, You are very right, we need more awareness as a parent to or even not a parent because I was completely thrown in the deep end as I am sure so were many others. No doctors dont know everything, because Karlia is doing so many things they said she wouldnt. There are a lot of children/ adults with AMC but also with other conditions with it, I have talked to many people that stare or smile at Karlia so they have a bit more info on why my daughter is able to flex her leg up and kick herself in the eye. Some are horrified, some are understanding.

By: kerryanne clark

kerryanne clark — Mon, 22 Mar 2010 22:56:14 +0000

Hi there i found your site through karen nolan davies. I thought i would have a look ! Its lovely to see that your child survived with arthrogryposis, that is very reassuring for other parents! Sadly i lost my daughter at 6 months into the pregnancy as the hospital told me she would not survive birth , she had arthrogryposis in her wrists and knees and her chest. Sadly we ended it through harsh information given to us from the doctors. I will never know whether it was the right decision we made as there is alot of info on the internet now that i did not know at the time! I wish you and your family the very best and to say thankyou for letting people like me to come along and have a read! This condition needs so much more awareness made for parents . once again thankyoux