Comments on: Support http://www.amcdocumentary.org Living with AMC Sat, 04 Sep 2010 23:58:05 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Jeanni http://www.amcdocumentary.org/support/comment-page-1#comment-5806 Jeanni Sat, 04 Sep 2010 23:58:05 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5806 My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i’m hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren’t quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery’s and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis? id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you!!! My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i’m hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren’t quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery’s and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis?
id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you!!!

]]> By: Jeanni http://www.amcdocumentary.org/support/comment-page-1#comment-5805 Jeanni Sat, 04 Sep 2010 23:57:03 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5805 My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i’m hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren’t quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery’s and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis? id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you! My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i’m hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren’t quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery’s and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis?
id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you!

]]> By: Jeanni http://www.amcdocumentary.org/support/comment-page-1#comment-5804 Jeanni Sat, 04 Sep 2010 23:56:26 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5804 My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i'm hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren't quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery's and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis? id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you! My name is Jeanni and i am eighteen years old,my son Graysen is eight weeks old and we found out a few days after he was born that he has arthrogryposis,more specifically amyoplasia, i’m hoping and pray my son can live a normal independent life, at this point in time most of his joints are stiff and he has so little muscle in his arms they aren’t quite moving yet,i was wondering what symptoms you were born with and what the outcome has been after treatments and surgery’s and such,what limitations do you have and wait activities are difficult for you to engage in because of you arthrogryposis?
id really love the opportunity to chat with you about this it would really be nice to chat with someone who understands arthrogryposis even better then i do! thanks for y our time,hope to hear from you!

]]> By: Amanda http://www.amcdocumentary.org/support/comment-page-1#comment-5321 Amanda Thu, 12 Aug 2010 22:16:02 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5321 I am a 31yr old female from Minnesota living with AMC.. I have 3 kids of my own and married 10 years. I would also like to offer any support or questions I may answer. It's great to find others living with AMC and know how they are coping and dealing with it. Thanks Amanda I am a 31yr old female from Minnesota living with AMC.. I have 3 kids of my own and married 10 years. I would also like to offer any support or questions I may answer. It’s great to find others living with AMC and know how they are coping and dealing with it.

Thanks Amanda

]]> By: amcdocumentary http://www.amcdocumentary.org/support/comment-page-1#comment-5237 amcdocumentary Mon, 09 Aug 2010 03:15:49 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5237 Dave, I keep thinking of you. Actually may have good news. I will be in Arizona hopefully later this year. I would love to meet up with you. I can email details as soon as I have them. Will also email where exactly I will be in AZ. Can't wait to meet up. Peg Dave,
I keep thinking of you. Actually may have good news. I will be in Arizona hopefully later this year. I would love to meet up with you. I can email details as soon as I have them. Will also email where exactly I will be in AZ. Can’t wait to meet up.
Peg

]]> By: amcdocumentary http://www.amcdocumentary.org/support/comment-page-1#comment-5233 amcdocumentary Mon, 09 Aug 2010 03:10:47 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5233 Caitriona, so glad to hear from you. I have a lot of questions for you and plenty of other friends in you age group. I will email you privately with more details. Thanks for reading and supporting my passion project. Peg Caitriona, so glad to hear from you. I have a lot of questions for you and plenty of other friends in you age group. I will email you privately with more details. Thanks for reading and supporting my passion project.
Peg

]]> By: Caitriona http://www.amcdocumentary.org/support/comment-page-1#comment-5184 Caitriona Thu, 05 Aug 2010 22:57:07 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-5184 Hi there, Im Caitriona, 22, from Northern Ireland. I've been living with Arthrogryposis since birth. I do live a mobile and full life but like everyone some days I just wish I was normal!! I would be happy to answer any questions you may have and if possible speak to someone with Arthrogryposis at a similar age and find out how they overcome daily tasks life throws at them! Hi there,

Im Caitriona, 22, from Northern Ireland. I’ve been living with Arthrogryposis since birth. I do live a mobile and full life but like everyone some days I just wish I was normal!! I would be happy to answer any questions you may have and if possible speak to someone with Arthrogryposis at a similar age and find out how they overcome daily tasks life throws at them!

]]> By: David Graham http://www.amcdocumentary.org/support/comment-page-1#comment-4747 David Graham Mon, 05 Jul 2010 22:45:32 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-4747 Hello again from Phoenix, It's been quite some time since I've spoken to you, I'm so glad to see the documentary coming along so well. Just a recap of me, I'm 36 & have living with Arthrogryposis since birth. I'd love to still assist in any way I can. Thanks, Dave Hello again from Phoenix,

It’s been quite some time since I’ve spoken to you, I’m so glad to see the documentary coming along so well. Just a recap of me, I’m 36 & have living with Arthrogryposis since birth. I’d love to still assist in any way I can.

Thanks,

Dave

]]> By: amcdocumentary http://www.amcdocumentary.org/support/comment-page-1#comment-4447 amcdocumentary Mon, 21 Jun 2010 01:53:47 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-4447 Jenn, Thanks for posting. I would love to talk to you a bit more. It makes me so happy to find new adults and share stories. Plus I think it is very important for younger kids with AMC to see adults living a happy life. I will email you with some of my questions. Always wanted to visit Maine..Think I may have to add to my roadtrip log. Peg Jenn,
Thanks for posting. I would love to talk to you a bit more. It makes me so happy to find new adults and share stories. Plus I think it is very important for younger kids with AMC to see adults living a happy life. I will email you with some of my questions. Always wanted to visit Maine..Think I may have to add to my roadtrip log.
Peg

]]> By: Jenn Bell http://www.amcdocumentary.org/support/comment-page-1#comment-4409 Jenn Bell Sun, 20 Jun 2010 01:22:50 +0000 http://maggie.graphicallydesigningblogs.com/?page_id=5#comment-4409 Hey there, I just wanted to let you know that this site is amazing! I am a 31 year old from Maine to has been living with arthrogryposis since birth. The support means so much, and please feel free to ask should you have any questions. Thanks again, Jenn Hey there,
I just wanted to let you know that this site is amazing! I am a 31 year old from Maine to has been living with arthrogryposis since birth. The support means so much, and please feel free to ask should you have any questions.
Thanks again,
Jenn

]]>